Dispelling respite myths for people with dementia and their carers
ReThink Respite is a new online resource aiming to support people with dementia and their carers and help them to better understand the benefits of respite services.
The ReThink Respite resource will help people with dementia and their carers better understand respite services
The site gives detailed information on the different types of respite and resources for carers include checklists, a decision guide, helpful advice and where to find support.
The project also includes a coaching program providing tailored support for people living with dementia, where carers can learn more about respite strategies and local services.
ReThink Respite is a project of the University of Wollongong’s Centre for Health Initiatives. It was funded by the Alzheimer’s Australia Dementia Research Foundation via the Resthaven Incorporated Dementia Research Award worth $150,000 and led by Dr Lyn Phillipson.
“There is plenty of evidence to show that respite can sustain carers to continue in their caring role and keep the person with dementia at home for longer, and yet the proportion of carers that use available respite and other support programs is low,” according to project leader, Dr Lyn Phillipson.
“Respite should be affordable, reliable, flexible and tailored to meet the needs of people with dementia and their carers. It should be incorporated in the early stages of caring and as part of an ongoing plan for support and assistance.
“There are lots of misconceptions about respite, such as it being a last resort, or an avoidance of duty or responsibility. We want to challenge those myths and encourage carers to ‘ReThink Respite’. We want carers to know what is available and understand the benefits of respite for themselves and the person living with dementia,” Dr Phillipson says.
Wendy Morey, executive manager Workforce Development and Governance at Resthaven says “We are pleased to see the results of Dr Phillipson’s award come into fruition with such a valuable resource. It is an example of how innovative research can translate into real benefits for older people and their carers.
“The ReThink Respite resource will help people better understand respite services by dispelling myths and educating carers of the benefits of respite services. Ultimately, we want to increase uptake and inform and shape service delivery of respite in the community,” she adds.
The ReThink Respite website also offers service provider training and further information and resources for health professionals. It also includes a service directory for people living in the Illawarra and Shoalhaven regions.
Visit the ReThink Respite webpage at rethinkrespite.com
