Cartoons offer important message for carers

The cartoons for carers, called ‘CareToons’, are designed to help carers manage issues related to behavioural change which is estimated to effect between 60% and 90% of people with dementia living at home.

Associate Professor Lee-Fay Low, from the University of Sydney’s Faculty of Health Sciences, says 1.2 million Australians are involved in caring for people with dementia and the project gives family carers online access to practical strategies that can help in stressful situations.

“Caring for a loved one with dementia can be immensely challenging and dealing with changes in behaviour is one of the biggest sources of stress for carers,” Associate Professor Low says.

“Sometimes even a small habit like asking the same question over and over, or continually losing things can cause a great deal of angst if people don’t understand why it’s happening or have strategies to handle it.

“The CareToons are a fun way of giving carers access to proven strategies in their own home so they don’t have to find someone to look after their loved one or travel to attend a group for advice.”

The cartoons cover a range of behavioural changes common to people with dementia including not sleeping at night, wanting to go home when they are already home, suspecting that others are stealing from them, and not wanting to socialise. At the request of carers the cartoons are silent so they can be watched quietly.

The series was developed based on the experiences of carers like Imelda Gilmore, who cares for her husband Graham.

“Almost always, when I have had a need for a solution in caring for my husband, I have been alone,” Mrs Gilmore says.

“To be able to find help without the need for going anywhere or calling anyone is a very powerful asset.”

With CareToons, Mrs Gilmore can visit the website, quickly spot the description of the problem she requires help with and, within two minutes, she can see one or more solutions to her problem depicted in an easy to follow cartoon.

“Best of all, I can complete a check sheet to keep for next time and if I still need more help, I’m given details of who to call,” she says.

“This has the power to change my approach to the problem from feeling stressed and seemingly helpless to feeling less alone and armed with hope for a good outcome.”

John Watkins, Alzheimer’s Australia NSW chief executive, says the CareToons is an “innovative solution” for time pressed carers.

“The strength of these resources is that they are based on real scenarios, identified by people currently caring for someone with dementia,” Mr Watkins says.

There is about 324,000 people living with dementia in Australia, and about 70% of those live at home.

“We hope these will help provide useful strategies and information for carers navigating what can be a challenging time,” he says.

The researcher team from the University of Sydney will soon compare the effectiveness of the cartoon resources to traditional fact sheets.

The study is designed for carers of people with moderate to severe dementia. 

Find out more information on the study or register your interest.

Watch the ‘CareToons’ teaser below.